Children's heart surgery under threat

Published Tuesday, 04 September 2012
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A mother has spoken out about the threat to children's heart service in Belfast, after emergency surgery saved her daughter's life.

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When Louise Buchanan's baby daughter Lydia collapsed in her mother's arms three years ago, she was rushed from Antrim Area Hospital to the Royal Victoria Hospital for Sick Children.

"It was a very hard transfer for her," explained Mrs Buchanan, who is from Ballyclare. "They had made several attempts to resuscitate her and they were continuing to resuscitate her in the intensive care unit before we got to see her.

"We were told that there was no hope for Lydia. She would possibly be brain damaged, and we were told that a cardiologist had been called in who would investigate, and that this was to save us the trauma of a post-mortem at a later date, because it was expected that we would have to turn off life-support that evening."

But the cardiologist found a congenital defect had left Lydia with two holes in her heart and a narrow aorta, and surgery could make a huge difference to her survival. When she was strong enough, the baby underwent a heart operation at the only unit of its kind in Northern Ireland.

Lydia came through the surgery and is now a healthy three-year-old, but Louise has never forgotten how close she came to losing her.

We thank God every day for Lydia’s life and for the means by which her life was saved because if it was not here we would not have Lydia today.

Louise Buchanan

Now a health review has found that although the paediatric congenital cardiac service in Northern Ireland is above par, it would not be realistic to maintain.

Around 90 operations are carried out at the unit annually and Dr Miriam McCarthy is part of a working group set up to look into the service provided.

"We are looking at what a service ought to look like and how we will assess it and then what the options are for the best way to deliver it," she told UTV.

Dr McCarthy said the round the clock service needed to maintain a high quality surgery unit in Northern Ireland is unsustainable.

"To have that we really need a reasonably large team of doctors and nurses and support," she explained, "and normally that would require a minimum of four consultant surgeons.

"If we have four consultant surgeons, the expectation is that they would operation on 400 children.

"For our small service and small population it's almost impossible to see how we would be doing 400 procedures and how we would be supporting the workload that would be necessary for four surgeons."

If the paediatric congenital cardiac service at the Royal is withdrawn, young patients may have to travel to England for treatment, but Louise Buchanan said that would not have been an option for her daughter.

"Lydia would not have made a transfer anywhere else that night.

"To think that families like us, and many others who have gone through this already, could go through the same traumatic experience with their child and to take them to the Royal and to be told that there's no hope for your child because the service that once was here, that was completely safe, which the parents have complete confidence in, has been taken away..." said Mrs Buchanan.

Health Minister Edwin Poots says he is committed to a safe, sustainable cardiac surgery unit for children, but he must still make the decision on whether or not to shut down the option in Northern Ireland.

A consultation process, which is yet to begin, is expected to last three months.

© UTV News
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5 Comments
Maria Kennedy in North Down wrote (135 days ago):
Clark Clinic review was Found to be SAFE, but unsustainable. Given the Population of N.I, we Could Never Meet the Numbers Required,as there's only1.5Million in N.I! As the Mother of THREE Children(I myself also have CHD- Congenital Heart Disease)we've ALL have Been Operated on in The Royal-this is a VITAL&LIFESAVING ESSENTIAL Area of Our Children's/Adults Health in The North-The Only Unit of its Kind in N.I. We MUST Keep this Open! It's Not only Our Children but Future Children's Health Will depend on it!! CHD is The Most Common Birth Defect in N.I.!!
Doris Andrews in Australia wrote (263 days ago):
You can not put a price on SAFE. The Clark Clinic was found to be SAFE. It is Obvious what you should do. Closing the Clark Clinic would be irresponsible, and cost lives There is only one decision, it should be made now.
orla in Tyrone wrote (264 days ago):
Disgrace ! this should never have being allowed to go this far, aren't our MLA's meant to be on our side ! fight for our rights ! they should come out and make a stand on this, Well done Sue Ramsey for showing support now we need others !!!
Donna in Omagh wrote (264 days ago):
This story just shows you how important the 'childrens heart unit' is in belfast, my 16 month is on waiting list to undergo heart treatment, and the thought of him being put on another hospitals list over seas is a joke! We def need a specialist clinic like this to remain in north!
Karen Mc Verry in Newry wrote (264 days ago):
My daughter also had emergency cardiac surgery 8 years ago at the Royal when she was 3 weeks old after suffering a narrow aorta and a hole in her heart. She too nearly died and we had to be transferred from Newry which was hard enough as she was accompanied by a medical team who had to keep resusitating her on route. It is unimaginable thinking about what woud have happened if this service was not available in N.I. She would never have made it to England. Why take a service away when so many children are now born with heart defects needing treatment. We still attend paediatric cardiology at the Royal and appointments are now being stretched further apart as they just cannot cope with the increasing numbers of cardiac children. Its an absolute disgrace to think the the kids of the future may not live as a result of a stupid decision by government to close such a valuable service..... Please think of kids and the future of N.I !!!!!
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