Cancer sufferer in court battle for drug

Published Thursday, 09 February 2012
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A terminally-ill cancer sufferer has won the right to challenge a decision to refuse to fund a potentially life-prolonging drug.

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Carolyn Parkinson received High Court permission on Thursday to seek to judicially review the stance taken by the Belfast Health and Social Care Trust.

Lawyers for Ms Parkinson, 42, claim she is being treated inhumanly by the denial of funding.

The Belfast woman was diagnosed with an advanced form of breast cancer last year and given 12-18 months to live, according to legal papers.

She has begun a self-financed course of the drug lapatinib which could extend and improve the quality of her life.

Ms Parkinson's case centres on a decision by the Trust in October 2011 to refuse to pay for the treatment.

Her barrister, Frank O'Donoghue QC, told a preliminary hearing: "My client is actually on the drug so it's being funded privately, but there is a limited life expectancy.

"Therefore there is a need to move the matter forward."

Although licensed, lapatinib has not been approved by the National Institute for Health and Clinical Excellence (NICE) as a treatment for breast cancer.

It is understood that exceptional circumstances would therefore have to be demonstrated for funding to be granted.

But according to Ms Parkinson's legal team the Trust's decision was irrational, unlawful and failed to take into account the drug's potential to extend her life by months.

It was also argued that the immediate threat to her life was not properly considered.

Papers submitted to the judge warned that "the march of time... has in this case reached a deafening pitch".

In seeking leave to mount a full judicial review challenge, lawyers claimed breaches to Ms Parkinson's rights to protection from inhuman or degrading treatment, and to private and family life under European law.

Another submission advanced was that the failure to fund the drug infringed on the UN Convention on the rights of people with disabilities.

It was further alleged that the decision was predetermined ahead of a meeting between Ms Parkinson and representatives of the Trust.

On Thursday, counsel for the respondent accepted there were a number of issues to be dealt with but declined to make full submissions at this stage.

Mr Justice Treacy ruled that leave to apply for a judicial review should be granted.

The case is now due to proceed to a full hearing in May.

© UTV News
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14 Comments
belfastcraic in antrim wrote (101 days ago):
Why is it in this so called Democratic society are we watching a young mother have to go to court to fight for her right to extend her life, why do we sit back and watch,do we not have a right to voice are opinions, No we gave that right to are Political leaders, I would just like to know what they have done to help this young woman, I know we have all had people we love die of this Horrible Disease,I will be backing this women all the way, Hope you get what you need, and succeed in changing the system for us all...
Ivy Donnelly in Australia wrote (101 days ago):
I am discussed with the decision regarding Ms Parkinson,who has had rely on the goodwill of family,friends,and even strangers, who have given freely of their time and money, to try and raise the much needed funds for her to be able to purchase the drug she desperately needs to help prolong her life.. The Govermnent should be ashamed of themselves.the decision by the Trust should be overturned ASAP.
Yvonne in Belfast. wrote (102 days ago):
Must say Carolyn that my heart goes out to you, it's such a shame and disgrace that you find it necessary to have to fight so hard to get the life saving drugs you deserve. If the over fed and over paid lazy fat cats that make up the Northern Ireland Assembly were paid a salary in keeping with their performance and disposed of the hundreds of unproductive advisors, consultants and secretaries etc. and paid out less money on benefits to foreign invaders who don't deserve a penny of British taxpayers money then perhaps Poots would have the funds available to pay for the drugs that you as a citizen of Northern Ireland who has contributed to the National health Service deserve to get and should have without any further debate. I wish you well Carolyn and I pray that doctors and politicians will come to their senses and make sure that you get the drugs and treatment which you desperately require.
george in ards wrote (103 days ago):
maureen i agree with your comment if full, i was on holiday in turkey a few years ago, my wife and i went into a bar type cafe for refreshment, the man serving us during chit chat told us that he was going to england to get medical treatment free as he would have to pay for it in turkey, how many more of these people from god knows where have did this?this lady should get what ever she needs without question.
Maureen in N Ireland wrote (103 days ago):
Disgraceful-so many people coming from abroad and getting benefits and haven't even paid into the system. What about her human rights. Good luck and God bless Carolyn
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